Every parent awaiting the birth of their child has high hopes for their future, their health, happiness and overall well being. Many women and men speak about a fear during pregnancy that there is something wrong with their unborn child. For some parents, this fear becomes a reality as their child is deemed medically unwell or is diagnosed with a serious illness or disability. This can occur immediately after birth due to prematurity, birth complications or illness or it can be something that occurs years into childhood or even adulthood. Any parent hearing their child has a chronic or life-threatening illness is at risk of experiencing significant psychological distress. Even before any diagnosis, the treatment the child undergoes can prove traumatic for parents and can often leave a long lasting impact over their psychological well being. In the fourth edition of the Diagnostic and Statistical Manual of the American Psychiatric Association (APA, 1994) “ learning that one’s child has a life threatening illness” was added to the list of events traumatic enough to lead to posttraumatic stress disorder.
Consider the baby who is born premature; an estimated 15 million babies were born prematurely around the globe in 2010 (Lasiuk et al, 2013). When a parent gives birth prematurely they are often, with little warning, forced into an alien world of the Intensive Care Unit (ICU) or medical ward. One particular study looked at the experience of parents following the birth of their infant prematurely. Lasiuk et al, 2013 found that parents in this situation spoke about feeling frightened and disoriented. This stress was still evident for those parents who were informed that the chance of delivering a premature infant was high, meaning that preparation does not appear to decrease the fear associated with this event (Lasiuk et al, 2013). Parents remember the initial alarm or fear they experienced by the urgent activity of medical staff after the birth in the delivery room and the immediate transfer of their baby to the ICU. Fathers in particular spoke about the dilemma of where to go, do they stay with their partner or go with their baby? Women spoke at length about their feelings of guilt and inadequacy and their lack of trust in their bodies, their womanhood and their abilities as mothers. Upon transfer to the ICU, these parents reported feeling extreme stress, which was compounded by the environment, the lack of medical knowledge and the constant noise and beeping from machines; each one triggering fear in the parent as they were unsure of its meaning. These parents were forced to rely on strangers to keep their infant alive and thought about nothing else but the survival of their child (Lasiuk et al, 2013). Parents spoke about the uncertainty of their infant’s health as a major stressor, as one small change could alter the infant’s health status from stable to critical in a split second and again trigger a fear of loss in the parent (Lasiuk et al, 2013). The APA describes a traumatic event as one that threatens an individual’s life or integrity (or the life/integrity of a loved one) and evokes a sense of helplessness and horror. Premature birth was traumatic for parents in this study as it altered their perceptions, strained their coping responses, and triggered a range of physical, emotional, and behavioural responses including fear, anxiety, grief, depression, changes in appetite and sleep patterns and social withdrawal, (Lasiuk et al, 2013).
Past systematic review indicated that Post Traumatic Stress Disorder (PTSD) symptoms was not uncommon in parents of premature infants (Pierrhumbert et al., 2005) In one study they reported the rates of PTSD symptoms at 67 % for mothers with preterm infants (Holditch-Davis et al, 2003), another found all mothers of premature infants had significantly more rates of PTSD symptoms at 1-3 days, 14 days, 6 months and 14 months post birth (Kersting et al, 2004). While a more recent study, Jubinville et al, 2012, found that 3 years after birth of their premature infant, parents reported vivid memories related to the child’s early life, their appearance, behaviour, pain, procedures and anxiety. Miles et al, 2007, reported that over half of mothers in their study (63%) had scores indicting significant risk of depression following the birth of their premature infant. They noted that this risk declined after 6 months for some mothers. However, mothers whose children remained in hospital or were rehospitalized or who reported ongoing worry about their infant, had more depressive symptoms throughout the first year of life. Studies have shown that parental trauma following the birth of a premature infant is less related to birth weight, Apgar scores or length of stay in ICU and is more related to the parental challenges about being unable to care for their child (Shaw et al, 2006). Factors such as being unable to hold their infant, unable to help their child, or care or protect them from procedures or pain were included in these difficulties.
Sign up FREE today for unlimited access:
- Book appointments
- Free expert advice & tips
- Premium videos & audio
- Curated parenting newsletters
- Chat with your bloss community
- Discounts & competitions
- Special events
These tips can assist anyone who has felt triggered by discussion of the content in the talk from our Instagram LIVE. More detailed information can be found on the handout and workshop around trauma, also available on my page. Tips to control anxiety: Refocus your attention! Concentrate really hard on something in your environment: colours, […]
This workshop is all about understanding what Autism Spectrum Disorder (ASD) is and how it might affect your child and you as a parent. We then look at ways to help their communication, play and interaction, behaviour, anxiety and also look at parental self care which is often overlooked. The course is aimed at parents, […]
This programme is all about getting to grips with anxiety. It is a three part workshop spread out over three (roughly) hour long videos. Ideally you would complete one video each week, so that you can practice some of the material between sessions. To continue viewing… Get FREE, unlimited access to all content You must […]